Sites:
Adolescents Psychological Complications of Chronic Illness: Information from The Child Health Library of Children's Hospital of Pittsburgh.Care Coordination Guidelines for Children: Topics: family centered care, integration of care coordination, planning, implementation, evaluation described by the Florida Department of Health Children’s Medical Services Network. Includes assessment steps, descriptions, tips and ideas and forms on medical and developmental assessment and each topic.
Children and Grief - AACAP Facts For Families: Discusses how children handle grief and loss and signs of problems.
Chronic Illness: New and Old Ideas to Care for Children: Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project.
Coping in Parents of Chronically Ill Children: Assessment and Intervention Strategies: Article in Pediatric Nursing describes parent stressors, coping assessment tools, nursing assessment tools and a framework for intervention, including references.
Dealing With a Health Condition: Explains teenagers how to cope, to take control, deal with others.
Pain and Chronic Illness in Children: Short paper on the importance of pain management.
Parental Advise on Coping with Chronic Illness of your Child: Tips how to support a chronic ill child. Suggests education, explanation, deal with emotions, believe in discipline, responsibilities, family routine, role models, and coping with strangers.
Promoting Resilience in Youth with Chronic Conditions and their Parents: Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
Shared Vision of Parents and Pediatricians about Unmet Needs of Children With Chronic Health Conditions: Complete article (also as PDF) on longterm needs, financial and medical planning.
Starbright Foundation for Seriously Ill Children: Empowerment Programs: chatrooms for children and for family, videos on school re-entry, coping with hospital life, dealing with doctors, video on radiation therapy for preschool age; comic book for reintegration after burn injury; free explorer cd-roms
Teenagers and Coping with Chronic Illness: Tips and strategies for parents with newly diagnosed teenagers.
The Child With a Long-Term Illness - AACAP Facts For Families # 19: Describes the risk for developing associated emotional problems. The child with a chronic disease must cope with knowing that the disease is here to stay and may even get worse.
What is a Chronic Illness?: Explains to children what their ill friend or relative experiences and what they can do themselves.
