Sites:
A Day in a Life with Chronic Illness: Description of events for better understanding. Personal site.Center for Research on Chronic Illness, Carolina School of Nursing: Current research, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnarable people.
Chronic Care Model: Essential elements are the community, the health system, self-management support, delivery system design, decision support and clinical information systems.
Chronic Condition Self-Management Literature: Lists 330 books and articles, dated September 2003.
Chronic Conditions in Healthy Aging, SeniorNet: Patient advise on managing the health team, staying as healthy as possible, join a support group, try complementary therapies, rethink limitations, maintain a sense of humor, work at being optimistic.
Chronic Disease Management - Calgary Health Region: Chronic Care Model based on cooperation between providers to improve patient health and outcome. Describes model, literature overview, regional strategy, community care coordinators, current projects, key program components, patient class details, newsletter.
Chronic Disease Prevention - Overview: National Center (U.S.) describes statistics, (state) programs, risk surveillance, risk factors per state, accomplishments, and publications.
Chronic Disease Requires Doctor - Patient Relationship: Advise for doctors and health workers on treatment and support chronic ill patients.
Chronic Disease Surveillance in Canada: Background paper presents overview and proposes multi-partnered data base renewal (2003).
Chronic Illness Coping: Lists articles online including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
Chronic Illness Tips: Daily living strategies for coping with chronic illnesses, sorted by body parts. Personal website.
Chronic Illness: Acceptance is First Step towards Healing: Short description of day by day acceptance process.
Coping with Chronic Illness - for Counselors: Explanation of defense mechanisms or coping styles to counselors of patients.
Coping with Chronic Illness - for Families: Advise for family members, including communication, financial matters, dependance and independance and more resources.
Coping with Chronic Illness - Speech for Men: Personal story on how to deal with physical, emotional and spiritual aspects; applies to anybody with longterm disease.
Coping with Chronic Illness Stages: Paper discusses illness as a process with stages: crisis, isolation, anger, reconstruction, intermittent depression, and renewal. Advice on how to deal with new situation. Adapted from After The Diagnosis by Dr. JoAnn LeMaistre
Coping with Chronic Ilness and Depression: Advise to recognize depression and when to consult the doctor.
Dealing with Illness and Disability: Entry on Council, Community and Government support by the London Borough of Hackney. Related to Jobs, Leisure, Transport, Hospitals, Meals, Physical Diabilities, Allowances.
Effectiveness of Self Management with Chronic Disease: Paper discusses core skills, use in educational programs, effects on health status, key ingredients for more efficacy.
Expert Patients Programme for Long-term Patients: Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
Faced with a Life Threatening Illness.: Questions, concerns and links provided by Australian Palliative Care Council.
Guidance for People Facing Serious Illness: Handbook for mortals gives short, practical advice how to handle serious illness and dying.
Illness, Disability and Social Inclusion by Eurofound: Overview of social barriers for people with illness and evaluation of relevant European policies (education, social security, employment, anti-discrimination, independency) by European Foundation for the Improvement of Living and Working COnditions(170 pages).
Learning to Cope with Chronic Illness: Senior Citizens practical advise to patients and significant others.
Learning to Live with a Chronic Condition: Patient advise to communicate with health team; to learn; to decide on a treatment plan; to minimize costs. Lifepath Information Series.
Living with Chronic Illness: Advise on adjustments to patients, and short comment on hope.
Living with Chronic Illness and Disease: Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
Living with Chronically Ill People: Adjusting to illness in the family, several personal articles.
Living with Long Term Illness: Tips and ideas on dealing with a chronic condition in daily life. Personal site.
Living with Long Term Illness - Self Managing: Lifestyle changes are effective in self-managing a condition.
Managing your Chronic Illness: British Columbia's patient information.
Poem, Pain Management, Chronic Illness: Poem about coping with pain using relaxation and imagery.
Preventing Chronic Disease: Public Health Research, Practice and Policy: On line Public Health Research peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
Preventing Disability in the Elderly With Chronic Disease: Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
Self Management of Long-Term Illness: Seminar from The Pituitary Foundation's Third National Conference.
Self-Management Programs - Stanford Patient Education Research Center: Center develops, evaluates, and disseminates community-based, peer-led, self-management programs for people with all kinds of chronic diseases. Part of School of Medicine, California.
Ten Steps for Coping with a Chronic Condition: Harvard Health Publication Letter. Patient oriented advise.
Yoga For Chronic Illness: Yoga helps to maintain and restore health by stretching and breathing, short article.
