Sites:
Batten Disease Family Association: Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.Batten Disease Information Page: Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Batten Disease Support and Research Association: BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
Nathan's Battle: Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
seeAbility - Juvenile Battens Disease: An in depth article on this disorder, includes the stages of the disease and the symptoms.
The Luke and Rachel Batten Foundation: Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
The Natey Foundation: Information for parents and families of Battens victims.
