Sites:
Adam.com: An Overview: A definition of beckwith-wiedemann syndrome, along with a look at the alternate names, causes, incidence and risk factors.Beckwith-Wiedemann and Related Disorders Victoria: Information resource for families affected by the overgrowth disorders Beckwith-Wiedemann Syndrome, Simpson-Golabi-Behmel Syndrome or Isolated Hemihypertrophy.
Beckwith-Wiedemann Family Chat Forum: An international email discussion group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support.
Beckwith-Wiedemann Family Forum: A way for people from around the world who are interested in BWS to get support and share information.
Beckwith-Wiedemann Support Group: UK based support group. Offers a database of information and puts parents in contact with others in their locality.
BWSN: Beckwith-Wiedemann Syndrome: Information about this organization, created for parents, professionals, and others interested in this disease. An invitation to join an email support group.
Keep Kids Healthy: A discussion of beckwith-wiedemann syndrome, its features and treatments.
National Library of Medicine: weckwith-wiedemann syndrome, a list of synonyms, a summary and a major features.
The CaF Directory: A description of beckwith-wiedemann syndrome, features, and possible complications. Also information about a support group.
