Sites:
Coffin-Lowry Syndrome Foundation: Information about the organization as well as CLS. Includes FAQs, news, links, parent and foundation contact details.National Library of Medicine: Coffin-Lowry Syndrome (CLS): A table showing the synonyms, a summary and major features.
NINDS: Coffin Lowry Syndrome: Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
NORD: Coffin Lowry Syndrome: General information about this syndrome, its alternative names and further resources.
