Sites:
Ectodermal Dysplasia Society: Information about the organization as well as the ED condition. Includes links, news articles and contact details.National Foundation for Ectodermal Dysplasia: ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
NORD: Ectodermal Dysplasias: Offers synonyms, a general discussion and resources.
The Andy Fund: Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
The CaF Directory: Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
The Ectodermal Dysplasia Mailing List: Includes instructions on joining the list, FAQs and links to further resources.
