Sites:
Joubert Syndrome: Information sheet compiled by NINDS.Joubert Syndrome Foundation: Organization, conferences and contact details. FAQs about the disease, information center and resources.
National Library of Medicine: Joubert syndrome: Synonyms, a summary and a list of major features for this disorder.
Readers Digest Health: A brief discussion about joubert syndrome, its alternate names and further resources.
The Genetics of Joubert Syndrome and Related Disorders: Information is presented for both physicians and families with affected children, including disease description, treatment options, prognosis, and current research.
TheFetus.net: A detailed look at Joubert Syndrome starting with a definition, etiology, prenatal diagnosis, clinical findings, genetics and prognosis.