Sites:
Related Diseases Society: Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.American Society of Genetic Disorders: Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.
Genetic Information and Patient Services, Inc (GAPS): Links to online definitions, information sites, and support groups for genetic disorders and birth defects.
Genetic Interest Group: Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
Hereditary Disease Foundation: Information about this non profit organization, news, newsletters, recommended reading and contact details.
Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.: Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public.
Lysosomal Diseases New Zealand: Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
