Sites:
Ben's Dream: Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.Bennett Children's Foundation: Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
Children's Medical Research Foundation: A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome.
MPS III: Sanfilippo Syndrome: Information, including the causes, different forms, the inheritance and how the disorder progresses.
NORD: Sanfilippo Syndrome: Offers a list of synonyms, a general discussion and further resources.
