Sites:
NORD: Sturge Weber Syndrome: Offers a list of synonyms, a general discussion and further resources.Sturge-Weber Syndrome Community: Support group for individuals and families affected by SWS.
The Sturge-Weber Foundation: A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.