Sites:
Family Village: Links to chat rooms, web sites and information about Von Hippel Lindau's disease.Ocular Manifestations of Von Hippel-Lindau Disease: An article by Emily Chew, M.D., National Eye Institute.
Radiology: Von Hippel Lindau Disease: Genetic, clinical and imaging features from the NIH.
Von Hippel-Lindau Disease: Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Von Hippel-Lindau Family Alliance: Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data.
