Sites:
National Association for the Relief of Paget's Disease: Description of Paget's Disease in understandable language, local events, treatment, research and personal stories.Paget Foundation for Paget's Disease of Bone and Related Disorders: Information and programs for patients and medical professionals on Paget's disease of bone, primary hyperparathyroidism, fibrous dysplasia, osteopetrosis, breast cancer metastatic to bone, and prostate cancer metastatic to bone.
Paget's Disease Hub: Links to information and resources for the disease
Paget's Disease of Bone New England Registry: This registry, based at Massachusetts General Hospital in Boston, is seeking enrollment of persons throughout New England with Paget's Disease. Learn more at the web site.
Pagets-Disease.com: Information on diagnosis, complications, and treatment.
