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Naorp :: Health :: Conditions_and_Diseases :: Neurological_Disorders :: Huntington's_Disease (1)


Support Groups

Sites:

Huntington's Disease Information: Comprehensive resource on Huntington's disease.
Huntington's Disease Society of America: Research, assistance, and education.
Australian Huntington Disease Association (Vic): Information about Huntington Disease and HD support services available in Victoria.
Australian Huntington's Disease Association Inc.: Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.
Australian Huntington's Disease Association (Qld) Inc.: Gives disease information, services available in Queensland Australia and links.
Caring for People with Huntington's Disease: Information about caring for people with Huntington's disease, for patients, families and professionals.
CureHD Foundation: A charity site aiming to spread awareness, information, and news about Huntington's disease.
Generation's of Hope: Building a camp and advocacy programs for children and families of Huntington's disease.
HDSA, Arizona Chapter: Contains general information about Huntington's disease and specific information about this chapter's fund raisers and events.
Healthubs: Links to overviews, clinical trials, case reports, diagnosis, treatment, research programs on Huntington's disease.
Hungtington's Disease - Understanding Behaviour: Article by Dr. Jane Paulsen. Resources for families living with Huntington's Disease.
Huntington Disease Medical Clinic: The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada.
Huntington's Disease: An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Huntington's Disease Advocacy Center: Information, questions and answers, problem-sharing, personal experiences and articles on Huntington's disease.
Huntington's Disease Association UK: Supports people affected by the disease and provides information and advice to professionals.
Huntington's Disease Clinic: Information on Huntington's disease, research, and its management.
Huntington's Disease Facts at a Glance: Huntington's disease facts listed concisely.
Huntington's Disease For Families: Information for all families living with this disease including people with HD, caregivers, those at risk and young people.
Huntington's Disease Program UCHC: Services of the Huntington's disease program of the University of Connecticut Health Center.
International Huntington Association: Federation of national voluntary health agencies.
John and Jean's Story: A personal website with the story of a family affected by Huntington's disease (UK).
Juvenile HD: Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance.
Neurology Channel - Huntington's Disease (HD): Introduction to Huntington's disease, and an ask a doctor forum.
Nutrition for People with Huntington's Disease: Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease.
Shana Martin: The author is at risk for Huntington's Disease, so there is a lot of information on that subject, as well as her personal story.
The Huntington's Disease Lighthouse: Current information on treatments, drugs, support and patient resources.
Tony's Family Site: A personal website detailing how Huntington's disease has affected Tony's family and friends.
UCHC Huntington's Disease Program: Services of the Huntington's disease program of the University of Connecticut Health Center.

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