Sites:
Acute Intermittent Porphyria Forum: Information and links about Porph. Includes registration form for an email list.Canadian Porphyria Foundation: Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
Diagnosing the Porphyrias: An article by Thomas G. DeLoughery, Associate Professor of Medicine.
EPP: Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
King George II and Porphyria: Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
Me and AIP: Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
Porphgroup: An e-mail group at Yahoo dealing with the metabolic disease porphyria.
Porphyria: A look at the different types of these disease and some of their characteristics.
Porphyria: From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
Porphyria Hub: Links to overviews, full text articles, diagnosis and treatment and research projects.
Porphyria Page: A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
Porphyria: The Unknown Disease: Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
Porphyria: The Woman Who Has The Vampire Disease: Review on this book on porphyria written by Lenore B. Weinstein.
Porphyrias: Diagnosis and Treatment: Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
Prophyria in Charlottesville: An e-mail sent to Professor Huskey from a person working on a rescue squad.
Suite 101: Offers links and articles about Porphyria.
The American Porphyria Foundation: Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
