Sites:
Alström Syndrome: Clinical features, literature and research. Includes guidelines for health care professionals.Alström Syndrome of Canada: Includes information about the condition, and the organisation.
Alström Syndrome UK Support Group: Information centre and discussion forum for anyone with an interest in this disorder.
NORD - Alström Syndrome: Sample report, plus links to organisations. [Fee required for full report]
Smart Groups: Alström Families: Mailing list, pictures, links and files.