Sites:
Cystinosis Central: Information about this disorder, conferences, data for physicians, updates and links.Cystinosis Foundation: Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
Cystinosis Research Network: Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
