Sites:
Chase's Story: Personal account of one child's experience of this condition. Includes photographs.Contact a Family: Pierre Robin Syndrome: Main features of the condition and possible causes.
NORD - Pierre Robin Syndrome: Sample report, plus links to organisations. [Fee required for full report]
Pierre Robin Network: Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
